Friday, December 28, 2007
The book that changed my life and opened my eyes

It is 1964 in Lexington, Kentucky, and a rare and sudden winter storm has blanketed the area with snow. The roads are dangerous, yet Dr. David Henry is determined to get his wife, Norah, to the hospital in time to deliver their first child. But despite David’s methodical and careful driving, it soon becomes clear that the roads are too treacherous, and he decides to stop at his medical clinic instead. There, with the help of his nurse, Caroline, he is able safely to deliver their son, Paul. But unexpectedly, Norah delivers a second child, a girl, Phoebe, in whom David immediately recognizes the signs of Down syndrome.
David is a decent but secretive man—he has shared his difficult past with no one, not even his wife. It is a past that includes growing up in a poor, uneducated family and the death of a beloved sister whose heart defect claimed her at the age of twelve. The painful memories of the past and the difficult circumstances of the present intersect to create a crisis, one in which his overriding concern is to spare his beloved Norah what he sees as a life of grief. He hands the baby girl over to Caroline, along with the address of a home to which he wants her taken, not imagining beyond the moment, or anticipating how his actions will serve to destroy the very things he wishes to protect. Then he turns to Norah, telling her, “Our little daughter died as she was born.”
From that moment forward, two families begin their new, and separate, lives. Caroline takes Phoebe to the institution but cannot bear to leave her there. Thirty-one, unmarried, and secretly in love with David, Caroline has been always been a dreamer, waiting for her real life to begin. Now, when she makes her own split-second decision to keep and raise Phoebe as her own, she feels as if it finally has.
As Paul grows to adulthood, Norah and David grow more and more distant from each other. Norah, always haunted by the daughter she lost, takes a job that becomes an all-consuming career, and seeks the intimacy that eludes her with her own husband through a series of affairs. Feeling as if he’s a disappointment to his father, Paul is angry and finds his only release through music. David, tormented by his secret, looks for solace through the lens of his camera, the “Memory Keeper,” trying to make sense of his life through the images he captures.
But as The Memory Keeper’s Daughter so eloquently shows, life is a moving image, unfolding and changing beyond our control. Despite our desire to freeze a moment or to go back into the past and alter events, time presses us forward. With her heart-wrenching yet ultimately hopeful novel, Kim Edwards explores the elusive mysteries of grief and love, and the power of the truth both to shatter and to heal. (You can read more about the book and an interview with Kim Edwards here.)
When Katya was born, our lives changed, not only because she was our first child, but because she has down syndrome. I'd heard of down syndrome, but didn't know much about it or really thought much about it. After Katya was diagnosed, a million thoughts and emotions ran through my head. There was disbelief and fear, but more than that, there was peace. I knew that even though things might be different and hard at times, Katya was my daughter and I love her and things wouldn't be more than I could handle. It may take some time to discover her struggles and strengths, but everyday will be an adventure. As she has grown , we have learned so much about her and her disability.
Some days are harder and more frustrating than others, but those days are few. Katya brings so much joy into our lives that I wouldn't trade her, disability and all, for anything. With Katya's Early Intervention and physical therapy, we learn more of what we can do to help her reach her full potential. I know that Katya may do things a little slower and take a little longer to learn things than other kids, but I know that she can accomplish so much and we can help. My views on that were reinforced after listening to this book.
I was so distraught when David, the father, immediately wanted Phoebe institutionalized. I do realize that that was a common practice back then and peoples' views on the disabled were so different, but I couldn't imagine sending the child that I had grown to love over 10 months away never to be seen again. I can see why Caroline, the nurse, refuses to put Phoebe in the institution after she sees the condition of those forgotten children and adults. As a mother, I would have a hard time putting away and forgetting about your child and the hopes and dreams you have for them. It makes me so sad to see David lie to his wife and tell her that Phoebe died and hold onto that lie for his whole life. I can see why Norah was so upset and their relationship struggled as she sought for the love she never received in other places. I am not condoning her having an affair, but I have sympathy for her and her desire for closure and to be held tightly and comforted in the loving embrace of one who loves her. It is sad to see David and Norah grow apart with the lies and mistrust creating a bigger rift every day. Even though the circumstances of Phoebe drove the love from David and Norah, it brought love into other lives.
Caroline had so much love for Phoebe and others in turn loved Phoebe and changed. There was the older female professor whose father Caroline took care of and boarded with who found love. Caroline, who had never been truly loved back, even found love. So many people fell in love with Phoebe and changed their thoughts and opinions about the disabled. When faced with a trial and experience like this, one can either choose to accept it and love all that happens or reject it and accept the sadness and loss of love that comes from that rejection. I am constantly hearing from people how they know a child with down syndrome and how they are so happy and bring so much love. I'd have to agree with them. It seems that everyone who comes around Katya just falls in love with her and there is just so much joy. It's amazing to see. At first I didn't believe it, but everyday I see it happening over and over again. Whenever we go to the store, people look at her and they smile. They don't ever hesitate, they just start smiling. The love that abounds from a child like Phoebe or Katya is just amazing and you can truly see the innocence and love of children. I love waking up every morning and seeing the love that she has and brings. It is hard to comprehend sometimes.
An aspect of the book that I really appreciated was Caroline's fight to get Phoebe in public schools and to be given the opportunity to do all things normal kids can do. I am so appreciative of those early advocates and parents that fought for the rights of their disabled children. Because of them, Katya can go to public school and do anything that she wants. There are still barriers that need to be broken down, but there are so many opportunities for her.
Every part of this book had a different effect on me. Parts made me laugh. Parts made me cry. Parts got me really frustrated. The overall effect of this book was happiness and gratitude. I am grateful to have Katya in our family. I am grateful for all the opportunities Katya has to become the person she wants to be. I am grateful that attitudes and opinions on the disabled have changed over the years. I am grateful for family and friends that accept Katya and don't judge her or us because she is disabled. I am grateful for a wonderful husband who loves his daughter and would never think of giving her away. I am also grateful that my husband loves me so much that he would love and support me every day. I am happy that we were blessed to have Katya in our family. I am happy to see how happy Katya makes me and everyone she comes in contact with.
I am lucky. I am lucky to have Katya. She has changed my life. Reading this book changed my life. I have more understanding and more love for the disabled and for disability advocates. I feel more blessed than ever to have the opportunity to raise Katya and feel more motivated to help her achieve all of her dreams. I want her to have access to everything and I will fight to give that to her. My eyes are opened to the amount of love these people have and how truly lucky I am. I'll never take it for granted or feel sorry for myself, because I truly am one of the lucky ones.
Thursday, December 20, 2007
Free Rice Marathon
Tuesday, December 18, 2007
Make a Difference Wednesday!

If you have a chance, please spend a couple minutes there and pad our stats. ;)
My students would really appreciate your help.
In other news. The SWAT team wiki is up and running. It looks great. The students have done almost all of that all by themselves. They are doing a remarkable job! Stay posted for the website for gratitude if we can ever figure out how to get the form to work.
Friday, December 14, 2007
Staci is a wonderful wife
"I love you Daddy! Love, Cali"
It also had a little picture. Cali is a genius, but she can't doesn't quite have the fine (or gross, for that matter) motor skills to shoot a picture off in an email, so thanks, Staci. You are a great wife and mother.
Tuesday, December 11, 2007
Amazing. I love it!!!

There are a lot of great things about the internet. I really love it. This little girl is trying to make a difference. "I can make a difference by..." is the theme for this year's Refections contest, which is put on by PTA's throughout the nation (apparently). She is trying to make a difference by doing small things, but it turning out to be much larger. Check out her blogroll of people that are helping or at least talking about it. This kind of stuff is fascinating. I will have to brainstorm with my kids tomorrow to see what we can do to win this really neat prize.
Monday, December 10, 2007
They match
Monday, December 3, 2007
She's Home!
Her are some pictures from yesterday.
Nya was so excited to see baby Cali that she just couldn't
wait to see and hold her. Her excitement was so cute!
Friday, November 30, 2007
One Happy Family
Cali's Bath
Cali
Thursday, November 29, 2007
Cali Beverly Jones has arrived
Monday, November 26, 2007
39 weeks and ready
Sunday, November 25, 2007
BYU vs. Utah
Thanksgiving
Needless to say, my excitement was well founded
Although the score was low, it was a very exciting game. The third quarter flew by and the excitement really started with only two minutes left. Great game! Go COUGARS!!!
Wednesday, November 21, 2007
Wednesday, November 14, 2007
How big will the baby be?
Monday, November 5, 2007
36 weeks
100
Sunday, November 4, 2007
Friends
Another First!!!
How cute!
Katya's First Day at Nursery
Thursday, November 1, 2007
The Great Pumpkin Saga
and flesh cleaned out and still weighed about 30-40 pounds.
Wednesday, October 31, 2007
Happy Halloween!

Katya in her super cute Halloween pajamas from Grandma Jones. I just love them.
Is she too big for her crib?
Saturday, October 27, 2007
Boo at the Zoo
Today we went to Boo at the Zoo. It was fun, but way crowded. We lucked out and got a good parking spot. We went with Rebekah and Nya, which was a lot of fun. There were so many people there. There were companies handing out candy, but we didn't want to wait in line for 10 minutes to get one piece of candy. We found a few lines that were really short so we got the candy there. It was fun to see the animals. The monkeys were really active and the baby orangutan was swinging around everywhere. I really like going to the zoo and seeing the animals, but Katya's favorite part is looking at all the people. She was so good and the only noise she made was laughter. I'm glad she is so easy to please.
Sometimes it's so hard to get a picture where they are both smiling and have cute faces. Too bad I can't pull them out of seperate pictures and create a new one.

